| Yazarlar |
Nesibe Sümeyye Kütahyalıoğlu
Karabük Üniversitesi, Türkiye |
Arş. Gör. Dr. Gamze KAŞ ALAY
Kastamonu Üniversitesi, Türkiye |
| Özet |
| Purpose: Celiac disease (CD) is one of the most prevalent food-related illnesses in children, with a global prevalence of approximately 1.4%. CD can create an emotional burden, particularly on mothers, who are mainly responsible for managing challenges related to adherence to a gluten-free diet, high food costs, and food problems in schools and social areas. There is a gap in the literature, and parental experiences of raising children with CD should be explicitly examined. This qualitative study sought to provide insights into the experiences of parents raising a child with CD in the Turkish context. Methods: This study used a descriptive qualitative research methodology and conducted individual semi-structured video-based dyadic interviews with 19 parents. Results: Participants experienced both challenges and motivators through management of their children’s CD. Analyses of the interview transcripts through the data uncovered three main themes focusing primarily on parental concerns: (1) parental challenges in child’s disease management, (2) supportive care needs, and (3) parental expectations. Conclusion: A multidisciplinary team should approach the child and family immediately after diagnosis, and facilities should support parents with continuing education and psychological, financial, and social assistance. |
| Anahtar Kelimeler |
| Celiac disease | Gluten-free diet | Life experiences | Parents | Qualitative research |
| Bildiri Türü | Tebliğ/Bildiri |
| Bildiri Alt Türü | Özet Metin Olarak Yayımlanan Tebliğ (Uluslararası Kongre/Sempozyum) |
| Bildiri Niteliği | Web of Science Kapsamındaki Kongre/Sempozyum |
| Bildiri Dili | İngilizce |
| Kongre Adı | 2nd Global Virtual Forum on Pediatrics & Neonatology, World Pediatrics 2024 |
| Kongre Tarihi | 19-02-2024 / 20-02-2024 |
| Basıldığı Ülke | İngiltere |
| Basıldığı Şehir | Londra |
| Atıf Sayıları | |
| WoS | 1 |
| SCOPUS | 1 |
| Google Scholar | 1 |
