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Experiences, Difficulties, and Coping Mechanisms of Parents With Children With Autism: A Phenomenology Study in Türkiye       
Yazarlar (3)
Arş. Gör. Dr. Gamze KAŞ ALAY Arş. Gör. Dr. Gamze KAŞ ALAY
Kastamonu Üniversitesi, Türkiye
Doç. Dr. Havva KAÇAN Doç. Dr. Havva KAÇAN
Kastamonu Üniversitesi, Türkiye
Dr. Öğr. Üyesi Seniha KURTOĞLU Dr. Öğr. Üyesi Seniha KURTOĞLU
Türkiye
Devamını Göster
Özet
Autism spectrum disorder (ASD) has the potential to create a number of challenges and problems for parents due to having lifelong problem behaviors. The aim of this qualitative study was to explore the experiences, difficulties, and coping mechanisms of parents with children with ASD through a multidisciplinary team approach. This study employed a descriptive qualitative research methodology. Data were collected through semi-structured, face-to-face individual interviews with 12 parents, guided by a structured interview protocol. Data management and analysis were conducted using the MAXQDA program. A thematic approach was used in data analysis. Participants reported experiencing both challenges and positive emotions related to raising a child diagnosed with ASD, and described a variety of coping strategies. Thematic analysis of the interview data revealed five key themes centered on parental perspectives: (1) parenting a child with ASD, (2) families' reactions to the diagnosis, (3) psychological and social difficulties, (4) future-related concerns, and (5) perceived support needs. Parents of children have ASD have to cope with many problems throughout their lives. Resources are needed to support parents bio-psycho-socially. Enhancing the provision of standardized education and support to parents can be achieved by improving existing health and social policies, establishing formal support networks, and facilitating access to childcare services.
Anahtar Kelimeler
autism spectrum disorder | child | coping | parents | qualitative research
Makale Türü Özgün Makale
Makale Alt Türü ESCI dergilerinde yayınlanan tam makale
Dergi Adı Journal of Child and Adolescent Psychiatric Nursing
Dergi ISSN 1073-6077 Wos Dergi Scopus Dergi
Dergi Tarandığı Indeksler Emerging Sources Citation Index, Web of Science, Social Science Premium Collection, SCOPUS, CINAHL
Makale Dili İngilizce
Basım Tarihi 08-2025
Cilt No 38
Sayı 3
Sayfalar 1 / 11
Doi Numarası 10.1111/jcap.70035
Makale Linki https://doi.org/10.1111/jcap.70035