| Yazarlar (2) |
Nesibe Sümeyye Kütahyalıoğlu
Karabük Üniversitesi, Türkiye |
Arş. Gör. Dr. Gamze KAŞ ALAY
Kastamonu Üniversitesi, Türkiye |
| Özet |
| Purpose: Celiac disease (CD) is one of the most prevalent food-related illnesses in children, with a global prevalence of approximately 1.4%. CD can create an emotional burden, particularly on mothers, who are mainly responsible for managing challenges related to adherence to a gluten-free diet, high food costs, and food problems in schools and social areas. There is a gap in the literature, and parental experiences of raising children with CD should be explicitly examined. This qualitative study sought to provide insights into the experiences of parents raising a child with CD in the Turkish context. Methods: This study used a descriptive qualitative research methodology and conducted individual semi-structured video-based dyadic interviews with 19 parents. Results: Participants experienced both challenges and motivators through management of their children's CD. Analyses of the interview transcripts through the data uncovered three main themes focusing primarily on parental concerns: (1) parental challenges in child's disease management, (2) supportive care needs, and (3) parental expectations. Conclusion: A multidisciplinary team should approach the child and family immediately after diagnosis, and facilities should support parents with continuing education and psychological, financial, and social assistance. |
| Anahtar Kelimeler |
| Celiac disease | Gluten-free diet | Parents | Qualitative research | Life experiences |
| Makale Türü | Özgün Makale |
| Makale Alt Türü | ESCI dergilerinde yayınlanan tam makale |
| Dergi Adı | Pediatric Gastroenterology, Hepatology & Nutrition |
| Dergi ISSN | 2234-8646 Wos Dergi Scopus Dergi |
| Dergi Tarandığı Indeksler | ESCI SCOPUS Google Scholar |
| Makale Dili | İngilizce |
| Basım Tarihi | 01-2024 |
| Cilt No | 27 |
| Sayı | 3 |
| Sayfalar | 146 / 157 |
| Doi Numarası | 10.5223/pghn.2024.27.3.146 |
| Makale Linki | https://doi.org/10.5223/pghn.2024.27.3.146 |
| Atıf Sayıları | |
| WoS | 2 |
| SCOPUS | 2 |
